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The Spina Bifida Association of Iowa is excited to host the 2024 2nd Annual Golf Outing on Friday, May 3rd. SBAIA serves adults and children who are affected by Spina Bifida. Our mission is to build a better and brighter future for all those impacted by Spina Bifida. Some of the ways we are able to do that is through Educational programs, Mentoring Programs, Grant Assistance Programs, Social Events, Camp Scholarships, College scholarships, we also help families and individuals with Spina Bifida connect to one another through these programs as a community because we are stringer together! This golf outing is going to help us raise more money for our organization to continue the work we are doing and look to the future on how we can continually better assist our community. 

Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States. It’s a type of neural tube defect that occurs when a baby’s neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine”. Typically occurring within the first 28 days of pregnancy, while the neural tube is forming, Spina Bifida often occurs before a woman knows she is pregnant.

Commonly referred to as the “snowflake condition” of birth defects because no two cases are the same, Spina Bifida can range from mild to severe. The severity depends on everything from the size of the opening to the location on the spine.

Our goal is to reach $12k to be able to disburse evenly throughout the different programs that we offer. Come out enjoy a game of best ball with your pals and support an organization that is continually bringing smiles to families faces. We look forward to seeing you. 

EVENT DETAILS

Friday, May 3rd
8:00 am Shotgun
4 Person Best Shot 
$300 (plus merchant fee) per team

INCLUDES: Golf with cart and two drink tickets, lunch and prizes

Get information about becoming a sponsor and/or register to golf HERE.

A long, summer weekend of fun and friends and new connections.
Our summer camp (and your future) is So Bright!
You will need to wear shades!

Camp So Bright is our summer camp sponsored by the Spina Bifida Association of Iowa for individuals with Spina Bifida and their families. We invite you to join us for a long weekend of fun and making lifelong connections!

What is Camp So Bright?

A fun summer camp like all summer camps but dedicated to those with Spina Bifida. Camp facilities and activities are accessible! Families are invited to attend together.

Who can attend?

• Kids with SB and their families. At least one adult must attend with children 2-17.  Siblings welcomed.
• Adults with SB and their caregivers/family members. Special program/retreat for adults with Spina Bifida. Adults can register individually or if you are bringing a caregiver, please register as a family.
• Young adults with SB over 18 may attend without their family members, but must be able to manage their needs as independently as possible. Special accommodations can be made by request on your application.

What is planned?
Fun camp activities such as swimming, canoeing, tree climbing, rock climbing wall, zip line, train rides, escape room, nature activities hiking, tree climbing, archery, frisbee golf, arts and crafts, outdoor cooking, outdoor sleeping? (are you brave enough?), outdoor picnic, themed activities and more!

Programs: Group activities for mom, dads, siblings, kids and adults.

What are the sleeping and bathroom arrangements?
Sleeping facilities include large and small rooms with single beds. Families can stay together or break up into age groups, gender, accessibility needs etc. You can request sleeping arrangements in your application and accommodations will be made as available.

Arrangements will be made based on number of applications and requests, and suited to your needs as much as possible!  Please be patient with us as we plan our second year of Camp So Bright and try to make it the best experience possible for all!

About Camp Courageous
Camp Courageous, is our host camp facility for Camp So Bright! Just outside of Monticello, Iowa, it is a year-round respite care and recreational facility for individuals of all ages with disabilities.
Camp Courageous spans 400 acres of land and 33 buildings and serves nearly 10,000 individuals with special needs on an annual basis. Camp facilities are both modern and rustic, wooded and open, secluded yet accessible, and beautiful!

Registration
All attendees’ registration fees are covered by scholarships provided by SBAIA thanks to the generous support of donors. (Regular registration fee would be $450 per person)

Registration includes accommodations and all meals, t-shirt and water bottle.

Deposit Required
A deposit of $100 per family (up to 5 people) or $50 per adult individual is required to hold your spot.  This is non-refundable and considered a donation to support Camp So Bright and keep it sustainable!

No family or individual will be turned away due to the inability to pay. Scholarships are available by contacting Sydney Stuart at sydneys@sbaia.org

We look forward to a wonderful camp experience with you and your family at Camp So Bright! For questions or more information call or write the SBAIA at sydneys@sbaia.org or 515-979-2781

Deadline to register is April 30, 2024
Register HERE!

Schedule:
Thursday, June 13 at 5 – 10 p.m: Welcome to Camp / Connect!
Friday and Saturday, June 14-15: Fun activities / groups
Sunday, June 16 at 12 noon: Farewell to camp

The IowAbility Fair is a FREE, one-day event showcasing a vast array of adapted recreation and sport opportunities, as well as products and services designed for people living with SCI/D (spinal cord injury, disease, disorder) or other mobility impairments. Opportunities range from exploring information booths to engaging in fully adapted (ALL INCLUSIVE) sports, and everything in between. This fun-filled event is held at the beautiful Easterseals Iowa campus in Des Moines. https://www.easterseals.com/ia

The Spina Bifida Association of Iowa (SBAIA) serves adults and children who are affected by Spina Bifida. Our mission is to build a better and brighter future for all those impacted by Spina Bifida.

Registration for owAbility Fair will be posted soon, along with more details. Mark your calendars!

Join the FUNdraising Frenzy

Register & Rasie $100 on your personal fundraising page between March 1st and April 30th – and receive a special edition Walk-N-Roll t-shirt!

After April 30th, we’ll reach out to you with directions on how to claim your special edition t-shirt. Don’t stop there, though! You will still be eligible for a great line-up of incentives to choose from after the 2024 Walk-N-Roll season. The frenzy is the only way to sport your special t-shirt on event day.

REGISTER TODAY!

The Spina Bifida Association of Iowa (SBAIA) serves adults and children who are affected by Spina Bifida. Our mission is to build a better and brighter future for all those impacted by Spina Bifida. Our annual Walk-N-Roll is our biggest fundraiser of the year that raises funds to support the programs and services that assist people with Spina Bifida in Iowa. It’s also a day for everyone to come out and celebrate all of their fundraising efforts and walk (or roll!) strong alongside family, friends, team captains, and a full community of supporters! Join us by signing up to attend on October 6, creating your fundraising page, and helping collect donations so we can reach our goal together!

Later this year we will celebrate a remarkable milestone. We would like to extend a heartfelt invitation to you for the SBAIA 50th Anniversary Gala Celebration! Join us for a family-friendly evening of joy, reflection, and celebration as we commemorate 50 years of unwavering service to adults and children since 1974.

The event team is planning a beautiful evening to commemorate our significant milestone, and we invite you to be a part of our Golden Anniversary Gala. Will you network alongside our dedicated event team and engage with potential sponsors, sharing the story of our 50-year legacy? “Fabulous Beyond 50 was chosen as our event theme to embrace the past, but especially to look forward to a future filled with continued advancements, support and community strength.” Said Sydney Stuart, Executive Director. 

Corporate sponsorships are available. Individual tickets go on sale this summer. 

Contact us if you know individuals and businesses who will contribute to our mission as an event sponsor. We look forward to celebrating alongside you on this momentous occasion. Email Sydney Stuart at sydneys@sbaia.org for more information about becoming a sponsor.