Links

Spina Bifida Association of America – National association for Spina Bifida
Heartland AEA
My Spina Bifida Book
Emergency Preparedness
Iowa Medicaid Enterprise
Involuntaryjoy – Joy M. Newcom, in addition to being Stross’ mom, is the author of Involuntary Joy (www.involuntaryjoy.com). In this memoir, she chronicles her first five years as a mother, revealing the often unspoken thoughts and feelings that are familiar to parents and guardians of children with disabilities.
http://www.newsweek.com/2010/12/07/future-of-medicine-growing-new-organs.html – Arcticle about growing organs from adult stem cells.
SPEAK for SB – SPEAK for Spina Bifida stands for Spina Bifida Policy, Education, Advocacy, and Knowledge.
Web Site Disclaimer:
The information on this web site is not intended to be, nor is it, medical advice on the management or care of a person with spina bifida. Although every effort is made to assure that information is accurate and current, knowledge in the field of Spina Bifida is growing rapidly and all data is subject to change without notice. Neither SBAA nor any parties who supply information to this system make any warranty concerning the accuracy of any information found on or exchanged through this system. No endorsements of any products which appear on this web site are given or implied by SBAA. SBAA does not endorse any specific medical regime. You should not change your medical schedules or activities based on the information provided at this site. Always consult with a doctor/healthcare provider/medical professional before making any medical decisions. Please note: SBAA does not employ medical personnel in their national office. If you have a specific medical question regarding spina bifida please contact a spina bifida clinic or your physician. By navigating this web site, you waive any and all claims relating to the usage of material or information supplied by SBAA.