Spina Bifida Association of Iowa (SBAI)

The mission of the Spina Bifida Association of Iowa is to promote the prevention of Spina bifida and to enhance the lives of all affected.


The Spina Bifida Association of Iowa was formed over 40 years ago. Thanks to the support of a small group of passionate and committed volunteers, an association was formed and was nurtured thanks to their tireless efforts as well as the support of a partnership with the Iowa State Snowmobile Association. The goal of the organization was to provide assistance to and build relationships with people affected by Spina Bifida and their families. Even in its infancy, the Association was providing direct assistance through a range of programs which has included:

  • Campership Program
  • Family Assistance Program
  • Incontinence Rebate Program
  • Orthotic Assistance Program
  • Scholarship Program
  • Wheelchair Assistance Program

We are an Affiliated Chapter of SBA

In 2014, the Spina Bifida Association of Iowa joined the national organization as an affiliated chapter. The Spina Bifida Association (SBA) has a presence in more than 125 communities nationwide and touches thousands of people each year. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.

Even as an affiliated chapter, the SBA of Iowa maintains our own 501(c)(3) status, board of directors, and part-time staff member.


Board Members


Anna Wholey-Mundy, Des Moines



Immediate Past Chair (ex-officio)

Dan Biller; Olathe, Kansas




Judy Olson, Des Moines


Bruno Andreini, Urbandale


Jill Bell, Council Bluffs
Rhonda Brown, Johnston
Diane Glass, Des Moines
Cheri Horstman, Sioux Center
Ashley Larson, Webster City
Brandon Underwood, Ankeny


Staff (part-time)

Carlyn Crowe, Des Moines