A Community of Voices

Saturday, April 21, 2018
West Des Moines Marriott


9:00 a.m. Registration and continental breakfast

10:00 a.m. Keynote “Transitioning”
Betsy Hopson, Comprehensive Spina Bifida Program Coordinator 
Children’s of Alabama

11:00 a.m. Roundtables
Sharing Our Collective Expertise

12:30 p.m. Lunch

1:30 p.m. Speaker – “Putting Together Your Healthcare Team”
Betsy Hopson

2:30 p.m. Roundtables Round 2
Sharing Our Collective Expertise

4:30 p.m. Pool time!

6:30 p.m. Pizza Party and movie (kids)

6:30 p.m. Spina Bifida Grows Up – Cabaret of Storytelling (adults)
Featuring adults sharing experiences with love, intimacy, relationships, and “adulthood.”

Roundtable topics Round 1

  • Teens/Adults
  • New parents with infants or toddlers
  • Sexuality (parents only!)
  • Communicating successfully with your health care team
  • Dealing with emotional issues/behavior
  • Bladder/bowel management
  • School!
  • Hydrocephalis

Roundtable topics Round 2

  • Kids Club (Cheri Horstman)
  • Adaptive Sports
  • Iowa State Snowmobile Association
  • Walk-N-Roll kick off
  • WNR best practices for teams
  • WNR new software demo
  • Advocacy

Siblings Program (ages 7-17)

10 a.m. – 4 p.m. Led by Tarin Carter

SB Kids Program (ages 7-17)

10 a.m. – noon: Led by Courage League

Betsy Hopson

Betsy Hopson

Betsy Hopson has a Master’s of Science in Healthcare Management and has been the Spina Bifida Program Director at Children’s of Alabama (COA) and the University of Alabama at Birmingham for the past 12 years.  Prior to her role at COA, she was the Program Coordinator of the Hemophilia Program at Children’s Healthcare of Atlanta.  She has spent her career in developing population specific programs using the multidisciplinary clinic model.  In addition to handling all aspects of case management, she has developed teaching tools, transition guidelines and protocols, and clinic flow operation changes while participating in numerous published research projects.  She has also worked with the CDC in the development and initiation of both the National Spina Bifida Patient Registry project and the National Hemophilia patient registry project. She currently serves as the President of the Spina Bifida Association of Alabama and is a member of the National Spina Bifida Association Professional Advisory Committee.

Ed Day Hotel Information

Plan on staying overnight on Saturday night!

West Des Moines Marriott

1250 Jordan Creek Parkway
West Des Moines, Iowa

Room rate (group rate) is $109/night plus tax

SBA of Iowa will reimburse $50/night of your room charges for SBA Iowa members

Reimbursement forms will be available at registration

Book your group rate for Spina Bifida Assoc