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Why Give?

The Spina Bifida Association of Iowa (SBAI) serves adults and children who live with the challenges of Spina Bifida. Our mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected. SBAI is an affiliated chapter of the Spina Bifida Association, the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Education, advocacy, and service are at the heart of SBAI’s local programs. Research is supported at the national level by the Spina Bifida Association.

Lives are changed by the programs SBAI creates, the services the organization provides, and the accomplishments of its advocacy efforts. As a part of the SBA network of chapters, SBA of Iowa touches hundreds of people each year. This organization serves individuals with Spina Bifida and their families in Iowa. This is only made possible with the financial support of individuals like you who support SBAI.

SBAI works with a dedicated group of professionals, families, and individuals with Spina Bifida to provide resources, build connections, educate, advocate, and increase public awareness of Spina Bifida. Our goal is to provide resources to help individuals with Spina Bifida manage their condition and thrive!


How to Give

We invite you to support the Spina Bifida Association of Iowa today by making a gift.

Gifts may be made online or by mail. We also gladly accept pledges.

Checks may be sent to the Spina Bifida Association of Iowa at:
Spina Bifida Association of Iowa
8525 Douglas Avenue Suite 39
Urbandale, IA 50322

Questions? Call (515) 278-7013 or contact us by email at admin@sbiai.org


Honorary Gifts: Gifts That Keep on Giving

There is no better way to recognize special people in your life than with a gift to the Spina Bifida Association of Iowa. Your gift will be acknowledged in our newsletter, plus both the donor and the recipient will receive a personal acknowledgment of the honorary gift.

Honorarium or Tribute Gifts

Celebrate a special occasion or loved one’s birthday. Honor a special doctor, nurse or therapist. Applaud a friend’s accomplishments. Say “congratulations” or simply “Thank You”.

We encourage honorarium gifts for:

  • Birthdays
  • Health Milestones
  • Bat Mitzvah/ Bar Mitzvah
  • Career Promotions
  • Anniversaries
  • First day of something special for someone with Spina Bifida

Memorial Donation

The Spina Bifida Association of Iowa welcomes donations in memory of a loved one, be it a family member or friend. When the donation is received SBAI will send a personalized card to the family, or individual, indicated with notification of your gift of remembrance. The Spina Bifida Association of Iowa depends on generous contributions from individuals, corporations, and organizations to continue its services and programs in Iowa.

Please consider your family member or friend and the SBAI when a special occasion arises.


Matching Gifts: Maximize your Support for the SBAI through your Employer

Corporate employee matching gift programs are a great way to elevate your donation to the Spina Bifida Association of Iowa. Many employers generously match an employee’s (and oftentime even a retirees) gifts to a non-profit organization, which can provide an additional avenue for contributions. Matching gifts are truly just that; gifts that are matched by your employer when you donate. An employer-based matching gift program is typically an agreement to match dollar for dollar. Oftentimes, matching gifts are at 100% of the original donation – meaning if you donate $100, your company will match your gift with an addition $100 donation. The matching must be made within a certain period of time from the original donation (30 days is standard). Most companies with a matching program have a cap, or limit, to what they will match for each employee annually.

As a donor, you might have a few questions… What do I need to do to participate in a matching gift program? How do I designate the Spina Bifida Association of Iowa as a recipient of matching gifts for my donation? It is really pretty simple. Setting up for matching funds will only take a few minutes to get the ball rolling, and can really make a major impact on the organization that is receiving the funds. If your employer will match a gift to the Spina Bifida Association of Iowa, your company’s matching gift form should be submitted with your own cash donation to the SBAI office. How do I find out if your company has a matching gift program? Your HR and/or benefits department should be able to quickly answer this question. You will have you complete a form and return it to a specific individual designated to handle matching gifts at your company. If your gift is a one-time donation typically you can pick up the form and mail it to the office of the Spina Bifida Association of Iowa (see below address) with your check. From there we will process the form and payment and mail it to the appropriate address. It is customary for an employer to mail the matching gift check back the SBAI Office within 30-days where funds will be deposited and the matching gift can start working to benefit individuals with Spina Bifida in Iowa. Should you have more questions or need help with matching gifts please contact:

Carlyn Crowe, Executive Director
Spina Bifida Association of Iowa
8525 Douglas Avenue Suite 39
Urbandale, IA 50322
Cell Phone: 515-974-7775
Office: Phone: 515-278-7013
Carlyn.Crowe@sbaia.com

Your gift is tax-deductible. The SBAI is a 501c3 in the state of Iowa.
Thank you! Your gift will make a difference in the future of those living with Spina Bifida.


Planned Gifts

Planned Giving

Individuals who make a planned gift to the SBAI join a special group of donors who are supporting the sustainability of the organization. These special donors help to perpetuate the work of the Spina Bifida Association of Iowa by making provisions in their estate plans, by naming SBAI as a beneficiary in a life insurance policy, or by establishing a charitable gift IRA. By informing us of your planned gift, you will be included in this special group of donors. You may also choose to remain anonymous. If you have already made a planned gift, but have not shared this information with SBAI, please let us know so that we can celebrate your legacy!

Qualifying Gifts:

  • A bequest to SBAI in a will or trust
  • Naming SBAI as a Charitable Gift Annuity or Charitable Remainder Trust, that will ultimately benefit SBAI
  • Naming SBAI as a beneficiary of an IRA or other retirement plan


Special Funds to Support Special Programs!

The Dan Biller Fund

The Dan Biller Fund supports programs for adults with Spina Bifida. Dan Biller was a long-time board member and leader of the Spina Bifida Association of Iowa who retired from his leadership position in 2017 and was honored by this fund created in his name. His passion for the mission of the SBAI comes from his adult sister who has Spina Bifida, Mary Helen, who is living and thriving in Des Moines, Iowa!

Adults with Spina Bifida are living longer–that’s the good news! But there are challenges that come with managing Spina Bifida for life. Currently, there aren’t enough medical practitioners who specialize in Spina Bifida for our current adult population, and the medical needs of that population are constantly changing. Adults may also face unique challenges in employment, transportation, education, and social networking. Funds provided for adult programming can address these special needs in this growing area and help SBAI reach out to more adults with Spina Bifida.

Camp Scholarships

Going to camp is a major milestone and move toward greater independence for many children, especially a child with a physical disability. Spina Bifida has its own challenges when it comes to being away from home and having the security of a parent or caregiver for everyday care. We know that children with these special needs can bond together and create long-lasting friendships because they share similar everyday experiences with their conditions. For many kids with Spina Bifida, they may be the only child in their school or community with this condition, so being able to spend time with other kids like them is special and going to a special summer camp is a way to do just that!

The Spina Bifida Association of Iowa provides scholarships–or camperships!– for kids to go to special camps. These camps can be costly to attend and out of the price range of many families. SBAI has provided scholarships for kids to attend these camps:

  • Spirit Camp (South Dakota)
  • Adaptive Sports Camp (Cedar Falls, Iowa)
  • Camp High Hopes (Sioux City, Iowa)
  • Wonderfully Made Camp (central Iowa)
  • Ironwood Springs Christian Wheelchair Basketball Camp ( Minnesota)
  • Youth Rally (Colorado)

Each summer SBAI gets more requests for camp scholarships. Each child with Spina Bifida is eligible for a maximum of $500 for a camp each year.

To keep up with this growing demand for camp, we could use your support to sponsor a kid to go to camp. This is a great way to give and know that your gift is making it possible for a child to learn, make new friends and gain independence –all while having fun at camp!

College Scholarships

The Spina Bifida Association of Iowa supports college scholarships for students in with Spina Bifida in Iowa who are enrolling in an accredited program at college or university. SBAI provides $500/year for students aged 18-26 who complete an application.

Applications are available here.

You can support this program by sponsoring a student directly or contributing to our college scholarship fund. The Spina Bifida Association of Iowa camp and college scholarship programs are funded entirely by private donations from individuals, corporations and foundations with interest in higher education and training beyond high school for individuals with Spina Bifida.

Scholarship donations can be made as a one-time donation to the SBAI Scholarship Program or as an endowed gift. Endowed gifts are invested and the interest earned on the investment is used to fund scholarships annually with naming rights to a scholarship.