Adult Connections Group

Adults living with Spina Bifida are invited to a monthly group held on Zoom to connect about their challenges, triumphs, and tribulations. From supporting each other’s sorrows to celebrating each other’s successes, this is the place to be! Connect with all ages of adults via both Zoom and in real life get outings.  Our outings happen in various places with different activities chosen by those adults taking part in this connections group. Our virtual meetings happen monthly, and our in-person outings happen quarterly. So, tell us where you’re at and what your favorite restaurant/hang out is and maybe we can come there or meet halfway.

Keep on the lookout either on this page or our events page for upcoming events and links to upcoming virtual meetings.

New or Expecting Parent Info & Mentoring

We do our best to create relationships with the doctors throughout the state and neighboring states to get resources in the hands of those that are new or expecting parents to help prepare them and to let them know that we are here to help!

We have adults with spina bifida and parents of those with spina bifida that have also volunteered to mentor these new families. They will be there to provide advice, information, or just be an ear to vent to. If you would like to get connected with a mentor, please email [email protected] 

GAP: Grant Assistance Program

The Grant Assistance Program of the Spina Bifida Association of Iowa is a financial assistance program for individuals and families affected by Spina Bifida.

Camps & Camp Scholarship Program

Ready to go to camp? We can help!

The Spina Bifida Association provides scholarships – or camperships – for kids to go special camps.

College Scholarship Program

We believe in supporting access to a quality education as a way to assist individuals with Spina Bifida in achieving greater independence and quality of life.

Advocacy Priorities

The Spina Bifida Association of Iowa is committed to advancing equity, access, and inclusion for all people impacted by disabilities. We fundamentally believe that every person with Spina Bifida should have quality and knowledgeable care as well as equal opportunity to participate in society fully. We work with consumer advocates to illuminate the voices of the Spina Bifida community by engaging with local, state and federal representatives. Key priorities identified by our advocates are medical care, housing and home care. We are recruiting those impacted by Spina Bifida and individuals with advocacy experience interested in advocating on a local, state, and federal level. Register for the 2025 Teal on the Hill HERE!

Federal Advocacy

The National Spina Bifida Association hosts an annual Advocacy Summit each year called Teal on the Hill. This event brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC) which addresses issues such as: disability rights, affordable and accessible health care, medical supplies, and technologies.

Registration for 2026 will be posted after the first of the year.

Contact the office to become involved in this annual event:

Email: [email protected]
Office and cell: (515) 635-1463

Community Outreach

Thoughtful Support for Families – Gift Request Form

At the Spina Bifida Association of Iowa, we know that a thoughtful gesture can make a world of difference. Whether it’s a care package, a meal, or a small act of kindness, these gifts remind families that they’re supported by a caring community.

Who can request a gift?

Anyone! Families can fill out the form for themselves, or friends, relatives, and community members can nominate someone who deserves a little extra care.