Please join us for the Annual Winter Fun Day!

Snowmobile Rides • Games • Photo Booth • and more!

Attendees can start arriving at 11:00 am for snacks and winter fun games. Lunch will be provided at 12:00 pm. Snow coach rides on the snowmobile trail will start at 1:00 PM. In the event of a no snow day, we will have side by side UTV’s on site in place for the ride.

RSVP and/or become a sponsor/donate for this event HERE (updated sponsor sheet to come)

If you have questions about the activities at the event or would like to help out with the event please reach out to Craig Krapfl, 515.707.7237, [email protected]

The Spina Bifida Association of Iowa is excited to host the 2026 4th Annual Golf Outing in May – DATE AND LOCATION TO BE DETERMINED. SBAIA serves adults and children who are affected by Spina Bifida. Our mission is to build a better and brighter future for all those impacted by Spina Bifida. Some of the ways we are able to do that is through Educational programs, Mentoring Programs, Grant Assistance Programs, Social Events, Camp Scholarships, College scholarships, we also help families and individuals with Spina Bifida connect to one another through these programs as a community because we are stringer together! This golf outing is going to help us raise more money for our organization to continue the work we are doing and look to the future on how we can continually better assist our community. 

Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States. It’s a type of neural tube defect that occurs when a baby’s neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine”. Typically occurring within the first 28 days of pregnancy, while the neural tube is forming, Spina Bifida often occurs before a woman knows she is pregnant.

Commonly referred to as the “snowflake condition” of birth defects because no two cases are the same, Spina Bifida can range from mild to severe. The severity depends on everything from the size of the opening to the location on the spine.

Our goal is to reach $12k to be able to disburse evenly throughout the different programs that we offer. Come out enjoy a game of best ball with your pals and support an organization that is continually bringing smiles to families faces. We look forward to seeing you. 

EVENT DETAILS

MAY DATE TO BE DETERMINED!
8:00 am Shotgun
4 Person Best Shot 
$300 (plus merchant fee) per team

INCLUDES: Golf with cart and two drink tickets, lunch and prizes

Get information about becoming a sponsor and/or register to golf HERE.

A summer week of fun and friends and new connections.
Our summer camp (and your future) is So Bright!
You will need to wear shades!

Camp So Bright is our summer camp sponsored by the Spina Bifida Association of Iowa for individuals with Spina Bifida and their families. We invite you to join us for a long weekend of fun and making lifelong connections!

We are so excited to have you back at Camp So Bright for the 4th consecutive year!! This program is one of our favorites to host and cannot wait for this year’s camp.

Registrations and a confirmed date are to come!

What is Camp So Bright?

A fun summer camp like all summer camps but dedicated to those with Spina Bifida. Camp facilities and activities are accessible! Families are invited to attend together.

Who can attend?

• Kids with SB and their families. At least one adult must attend with children 2-17.  Siblings welcomed.
• Adults with SB and their caregivers/family members. Special program/retreat for adults with Spina Bifida. Adults can register individually or if you are bringing a caregiver, please register as a family.
• Young adults with SB over 18 may attend without their family members, but must be able to manage their needs as independently as possible. Special accommodations can be made by request on your application.

What is planned?
Fun camp activities such as swimming, canoeing, tree climbing, rock climbing wall, zip line, train rides, escape room, nature activities hiking, tree climbing, archery, frisbee golf, arts and crafts, outdoor cooking, outdoor sleeping? (are you brave enough?), outdoor picnic, themed activities and more!

Programs: Group activities for mom, dads, siblings, kids and adults.

What are the sleeping and bathroom arrangements?
Sleeping facilities include large and small rooms with single beds. Families can stay together or break up into age groups, gender, accessibility needs etc. You can request sleeping arrangements in your application and accommodations will be made as available.

Arrangements will be made based on number of applications and requests, and suited to your needs as much as possible!  Please be patient with us as we plan our second year of Camp So Bright and try to make it the best experience possible for all!

About Camp Courageous
Camp Courageous, is our host camp facility for Camp So Bright! Just outside of Monticello, Iowa, it is a year-round respite care and recreational facility for individuals of all ages with disabilities.
Camp Courageous spans 400 acres of land and 33 buildings and serves nearly 10,000 individuals with special needs on an annual basis. Camp facilities are both modern and rustic, wooded and open, secluded yet accessible, and beautiful!

Registration
All attendees’ registration fees are covered by scholarships provided by SBAIA thanks to the generous support of donors. (Regular registration fee would be $450 per person)

Registration includes accommodations and all meals, t-shirt and water bottle.

Deposit Required
A deposit of $100 per family (up to 5 people) or $50 per adult individual is required to hold your spot.  This is non-refundable and considered a donation to support Camp So Bright and keep it sustainable!

No family or individual will be turned away due to the inability to pay. Scholarships are available by contacting Sydney Stuart at [email protected]

We look forward to a wonderful camp experience with you and your family at Camp So Bright! For questions or more information call or write the SBAIA at [email protected] or 515-979-2781

Schedule (tentative – firm dates to be announced:
Monday, June 8 at 5 – 10 AM: Welcome to Camp / Connect!
Tuesday, June 9 through Thursday, June 12: Fun activities / groups
Friday, June 12 at 11 AM: Farewell to camp